“You Don’t Look Sick” Fibromyalgia Awareness May 12, 2025

If I have the courage to confess my vulnerability, to share my struggle with a hard to diagnose, difficult to treat, invisible illness ravaging lives, can my words help others in pain?

Three decades ago, my chiropractor in Switzerland, suspected my back problems were due to more than injuries. He surmised that I had fibromyalgia (FM) a musculoskeletal disorder that causes chronic over-all body pain. He recommended seeing a rheumatologist.

Unfortunately, most people suffering from FM either go undiagnosed for years or are misdiagnosed. On May 12, 1992, Fibromyalgia Awareness Day started to bring attention to this misunderstood disease and commemorate Florence Nightingale, the founder of modern nursing, who also suffered from fibromyalgia.

FM can include fatigue, anxiety, migraines, irritable bowel syndrome, skin sensitivity, stiffness and autonomic system dysfunction. It impacts the muscles, and can lead to pain numbness, tingling, twitching, restless legs and osteoarthritis. FM also often includes other co-infections and immune system dysfunction, which is why it is paired with CFS.

With FM, the stress response, an automatic brain reflex, is on autopilot. The brain sends out fight or flight signals with widespread effects. It’s as if one’s body is locked in a state of hyper vigilance, like a smoke alarm going off forever without a fire.

The problem lies with the amplification of pain and sensory processing in the central nervous system. Part of the brain goes haywire in glial cells.

“Most doctors don’t believe FM exists,” my Swiss rheumatologist told me, when he confirmed my FM diagnosis in 1996. “You are lucky that I do. Fortunately, you are protected by your profession. As a physical education teacher, you move all day. Movement is the best treatment for FM.”

At the time of my diagnosis, skepticism reigned within the medical community and general public. I suffered in silence and charged forward, determined to raise a family, teach and coach kids to never give up.

No matter how hard I try to manage pain, FM waxed and waned. Every flare up sent me spiraling in despair.

I remain locked in a state of hyper vigilance and heightened anxiety. FM deregulates sleep causing insomnia. With my body’s inability to enter the deep sleep stage, my muscles and brain never go into a restorative state, which results in muscle tenderness/pain/inflammation.

Specialists know that FM disrupts hormones, burns out adrenal glands, increases chronic pain and affects the sympathetic nervous system, but they still don’t know how to diagnose or treat it.

The clinical signs are nonspecific and overlap with other diseases. Ironically, researchers found eerie similarities between FM and long COVID, which helps legitimize FM. Research on long-haul COVID, which has similar effects, may offer hope.

Experts also know that fibromyalgia tends to run in families. My paternal grandma suffered from it back in the early days when FM was known as rheumatism or fibrocystic. My sister also has fibromyalgia.

Due to a lack of research and the difficulty in identifying causes of the illness, many practitioners still do not believe that the disease exists.

Believe me it’s real. As an iron-willed McKinzie descendant, resiliency is my middle name. As a former pro athlete, who has overcome many debilitating injuries, I am as tough as they come. Yet, the pain of FM can knock me to my knees.

Though the cause is unknown, there is a genetic predisposition. FM often manifests after a car accident, (check) or illness like Lyme disease (check 2) and the physical or emotional trauma after the loss of a loved one, parent or child (check 3).

There is no known cure, but thankfully fibromyalgia is not a death sentence like some forms of cancer and other illnesses.

My health is compromised, but I am still here fighting!

Many treatments fall short. Sleep aids to regulate sleep dysfunction, myofascial massage, exercise, diet, yoga, relaxation and breathing techniques can help.

I am not a trained heath practitioner. I cannot offer medical advice, but as a fellow human being,

I can share insight on how to cope.

I can validate that your pain is real.

I can remind you that you are not alone.

I can you cheer you on from my mountaintop!

Not Always Easy Flying easyJet

Though fewer people are flying abroad this summer, visitors are welcome everywhere in the UK and Europe. For travelers, who dare to hop the Big Pond, easyJet airlines offer low cost flights to most anywhere from the UK or Switzerland.

In 1995, Sir Stelios Haji-Ioannou founded the company to provide affordable air travel to the masses by offering low-cost fares in Europe. Thirty years later, easyJet operates over a 1,000 routes to 30 countries.

The company was founded in Luton, a city an hour north of London. Initially only two aircraft flew from Luton Airport to and from Glasgow. easyJet expanded to include popular holiday destinations. It has become one of the largest and most successful low-cost carriers in Europe.

Unfortunately, the airline is notorious for changing arrival/departure times and cancelling flights at the last minute, leaving travelers stranded. When all goes right, you can’t find a better bargain, but when issues occur, you are on your own.

What you economize on your ticket, you pay for in wear and tear on your body. Taller, bigger build bodies beware! Space is limited. Seats do not recline. This no frills airline offers minimal comfort and service in order to maintain bottom line costs.

Different from other low budget airlines, easyJet slashed prices by introducing online booking and check-in systems. But travel on easyJet is never for the feint-hearted. Just purchasing an online ticket takes the patience of a saint.

Flying economy without any baggage is a great deal, but any other accommodations, inflate the price. Seat reservation, luggage and speedy boarding are extras!

Boarding from the tarmac, like the old days, can be chaotic.

Snacks, meals, drinks, even water must be purchased by credit card only.

easyJet policy limits your carry on bag size to 45 x 36 x 20cm and it must fit under the seat. A second cabin bag, no larger than 56 x 45 x 25cm, is an additional fee. A checked luggage for the hold can cost more than flight.

Since our son and daughter-in-law live in the UK. We have become seasoned easyJet travelers, so I can offer useful tips.

  • When they announce your boarding gate, always at last minute, run!
  • No one cues in lines like at Disneyland. Passengers herd at gate, like cattle awaiting slaughter.
  • Stand your ground. Hold your place in line directly behind the speedy boarders.
  • Board as early as possible to assure you and your luggage sit together!
  • Better yet don’t carry baggage. Wear it. (A 22-pocket Scottevest, a special US survivalist jacket, works well if you can afford it.)
  • Have a back up plan for late arrival at your destination.
  • Enjoy your journey, but no matter where you go, stay zen.

Bon voyage!

Raclette – a Franco Swiss Favorite For 400 Years

Natives living in the French Savoie region or in the Swiss Alps will argue ’til the cows come home over who first invented raclette, but everyone who tries this traditional cheese/potato dish agrees it’s great. Raclette is thought to be at least 400 years old and remains popular today.

For centuries, herders in Europe’s mountainous regions have survived on this simple dish of boiled potatoes covered in melted cheese.

During its production, the raclette cheese is washed with salted water and bacteria smears. It must rest in a cave (real or man-made) with 100% humidity and a temperatures of about 60 degrees F,° which accelerates the breakdown of the protein and fat, creating different flavors, nutty, creamy and a bit buttery and aromatic when heated.

On every visit home to Switzerland, my adult kids request raclette. Instead of the traditional equipment meant for the half cheese, we use an electric grill with individual serving trays and raclette cut into portions. Since moving to the mountains, we decided to try the authentic dish.

As you enter our village of St. Cergue, the Beef’n Cheese Restaurant is easy to locate off the round-about. A giant, red ceramic cow with a white cross symbolizing the Swiss flag, stands on the balcony. Locals stop for a beer at the cafe table out front.

The interior of the restaurant is a bit kitsch, but charming with its spotted cow upholstered chairs, long wooden tables, a wall-sized hearth and local decor. Cow bells hang from wooden beams, antique skis stick out of giant milk jugs and ski posters from the 40’s decorate the walls.

Our waitress brought us a half a wheel of cheese melting on the authentic raclette machine. Gerald tilted the wheel and scraped the top layer of cheese onto our plate of unpeeled potatoes. Raclette comes from the French word "racler," which means to scrape.

A basket filled with giant, marble-sized spuds are served with finger-sized vinegary cornichons and white cocktail onions. We ordered a side of charcuterie, a wooden cutting board laden with ham off the bone, jambon cru (dried beef) and dried saucisson à l’ail (garlic).

The “all you can eat” meal costs 31CH ($35) per person, which for a Swiss tourist town, is not unreasonably expensive. Traditionally, raclette is served with white wine, but our Frenchman ordered a Scramble Noir, a sublime red blend of five different grape varieties. Red or white wine, whatever, the French and Swiss agree never drink water with raclette. It will make your stomach bloat in indigestion!

Raclette was added to the 2024 World Championship Cheese Contest in Madison, Wisconsin.
”I personally love it," John Jaeggi, a contestant, said. "When it's cold, it's OK. But melted, oh my gosh, it's really good."
Though less well known in the US, I’ve yet to meet an American that didn’t enjoy raclette.

“Trader Joe’s stocks this cheese around the holidays,” my best friend, who moved back to the States, says, “I call and order ahead before it even hits the shelves, so I can throw raclette parties all winter.”

Whenever anyone visits us in Switzerland, we share this convivial meal and create memories for guests to take home.

No matter how many visitors we’ve served, we will never beat the new record!

In Martigny, Switzerland on April 5th, organizers of 'The Biggest Raclette Party in the World` brought together 4,893 people, including 361 raclette- scrapers, to claim the title.

How International Women’s Day, Title IX and Sterling Basketball Tie Together

Today, March 8, 2025, is International Women’s Day! Coincidentally, the United Nations began celebrating International Women’s Day as part of the International Women’s Year in 1975. That same year the Title IX (June 23,1972) Amendment stipulated full compliance with the law.

Title IX transformed education for women. After centuries of discrimination, the landmark civil rights law leveled the playing field in sports and allowed millions of women to earn degrees.

Speaking at Illinois State's 50th Title IX Celebration with legendary basketball coach Jill Hutchison, Olympian Cathy Boswell and other superstar alumni.

Gradually, Title IX revolutionized women’s lives in the US by opening doors to education and athletics.

Unfortunately here and globally, women are still subject to sex abuse and domestic violence and denied access to health care, education and equal opportunity in the work place.

In our hometowns, we see firsthand Title IX’s impact, as our daughters, granddaughters and great granddaughters enjoy the opportunities that my generation, and women prior to my time, fought so hard to ensure.

The 2025 Sterling High School Golden Warriors basketball team fell a game short a trip down state to Redbird Arena, my alma mater, in their run to repeat the 1977 first Illinois state championship. Their rise to glory was no less phenomenal. In four years they turned a 3-26 losing team into a championship contender.

This year's team with their tough defense and fighting spirit were reminiscent of SHS’s 70s and 80s teams like that 1977 state championship team, which included Coach McKinzie and Coach Smith, a dad/daughter, brother/sister combo, the 2025 team was also a family affair uniting sisters, coaches, dads, daughters and their families.

With perfect timing, Coach Jackson’s team gave the community a reason to cheer at a scary time when many civil rights and federal departments protecting health and education threaten to collapse at an alarming rate.

I am proud of Sterling’s stellar basketball season. Like many Sterlingites who may have moved away, I still bleed blue and gold. Our Sterling High School days remain tattooed in our hearts.

As a pioneer, I lived daily the battle for equality and I have had the privilege of seeing opportunities for women explode. I am also old enough and wise enough to know our rights could disappear.

Today, in the Caitlin Clark and Paige Bueckers era, we celebrate the popularity and media exposure of women’s basketball. We love watching the NCAA’s March Madness, the Unrivaled 3-on-3 inaugural season and the W. We appreciate the opportunities awaiting our daughters, not only in basketball, but in so many other arenas.

But work must continue in the US and around the globe to improve women’s health care, to protect reproductive rights, to guarantee equal pay, to curb the epidemic of violence against females, and to allow the voices of other women to be heard worldwide.
Today women succeed, not only on the playing fields, but in education, business, medicine and other professions where we were never allowed before.

Today we are winning, but the risk of losing all has never been so great.

Today, we must fight to guarantee these rights will remain for future generations.
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Five decades ago, the UN started the First National Women’s Day. Fifty years ago Title IX was fully enacted.

What can we do today to assure women’s opportunities and their contributions will stand in the next century?

Another Birthday, A Promising Path.

Yeah! I made it. Another birthday. Another year.
But it is getting harder to hang in there.

I am falling behind in the race to survive. I want to walk as far as my feet will carry me, sing as loud as my voice will rise and write as fast as I can before I am gone.

From the top of my skull to the tip of my toes, my body has taken a beating. But, I keep waving the warrior flag and drawing on the strength of my ancestors. I could have, should have, would have died after a rabid skunk bite as a toddler, after a neck breaking fall off a bicycle in Germany, after flipping out of a car speeding down the freeway in France, after splitting my skull in a bad fall at home in Switzerland.

Yet, for some reason, I am still here for another spin around the sun!

Ever the great pretender, I fake my way forward — tackling Lyme’s disease, environmental illness and more accidents than I can count.

I endure physical ailments with self-discipline and endless rehabilitation - physical therapy, chiropractic treatment, massage, heat, ice and talk therapy.

I fought back from broken bones, but how do you recover from a busted brain?

How do I manage a mind that misfires from damage to the frontal lobe, the mastermind that pulls the strings in the back of the brain that fulfills all human functions?

For the past five years, unable to filter sounds, lights, voices, commotion and to curtail the cacophony of background noise that is the essence of life, I hide in a dark, quiet room. I avoid the masses and loud places - stores, arenas, theaters, restaurants, events and situations that create sensory overload.

Brain activity analysis

I wanted to give up. The Functional Neurology Center gave me hope. After their high- tech diagnosis, I attended an intensive week of therapy, a Boot Camp for the brain.

I rode in my “space ship,” the GyroStim. It’s a state of the art, multi-axis rotating chair that works with balance, cognitive and sensory integration and affects proprioception. I underwent Virtual Reality training to rehabilitate balance dysfunction. I zapped pain with Accelerated Recovery and Performance (ARPWave) Neurotherapy and Cranial low level laser treatments. I repeated exercises, inhaled Molecular Hydrogen and completed therapies so bizarre, it felt like sci-fi.

I learned our brains are marvelous mysteries; specialists are understanding more about neuroplasticity every day. FNC is the way of the future.

Neuroplasticity is the ability of the nervous system to change its activity in response to intrinsic or extrinsic stimuli by reorganizing its structure, functions, or connections after injuries, such as a stroke or traumatic brain injury (TBI)".

As I struggle to retrain my left side, jump start my cerebellum, and control my frontal lobe, I work just as hard to reset my attitude.

I am an athlete. I may be broken down, worn-out, defective, but I still “run.”

I accept that I may be in training forever in the only game that matters - life.

With age, injury and illness the body weakens, but the spirit grows strong. I get fed up living in this shit shell of a body, but by golly my soul shines on.

In my dance with death, I appreciate better than most that I am living on borrowed time - we all are.

I should be 6 feet under, instead when dawn breaks every morning, I take a deep breath and whisper, “I am strong. I am grateful. I am here.”

Hometown Teams Unite Us in Divisive Times

While Americans fear for our future during this time of national turmoil, the Sterling Golden Warriors basketball team unites us and gives us something to cheer about.

Sisters of the past (and brothers who battled with them) remember the struggle. From the suffragettes to civil rights, from Wade vs. Roe to Title IX, we must never forget the sacrifices of those who fought for the privileges we may be losing today.

 

Title IX

“No person in the United States shall,
on the basis of sex, be excluded from participation in,
be denied the benefits of, or be subjected
to discrimination under any education program
or activity receiving Federal financial assistance.”

Nearly 50 years ago, in the infancy of Title IX, an odd trio, McKinzie a respected boys’ coach, Strong, a GAA coordinator, and Smith, the first African American teacher in the conference made sure female athletes had equal opportunity at Sterling High School(SHS).

While our nation struggled with civil rights and gender equity issues, a small town team united blacks, whites and Hispanics in one dream — a state championship. In 1977, Illinois State University hosted the first IHSA girls’ basketball tournament. It could only happen here where legends like Jill Hutchison (basketball), Linda Herman (volleyball) and others assured Title IX’s enactment into law. https://goredbirds.com/

https://goredbirds.com/

Right place. Right time.

In my era, pre Title IX, girls’ teams weren’t allowed on the shiny wooden fieldhouse floor. We played on tile courts in half-flight “girl’s gyms” with chalk scoreboards. We wore the same uniform for every sport each season.

Fast-forward to 2025, another athletic family with Sterling roots, Novak Carbaugh/Jackson, returned to teach and coach today’s SHS Warriors capturing the essence of that earlier time.

Coach Jackson’s mom, Laura Carbaugh, a friend of my sister Karen’s (1977 team), sent me the livestream link to the games, so I could see Sterling defeat Naperville. The hoop-a-la in Homer Musgrove Fieldhouse blew me away. The jumbotron flashed names, numbers and stats as players warmed up in stylish blue and gold uniforms. The Sterling players’ introductions were nearly as spectacular as WNBA players starting line-up announcements that we can see on national TV.

A Title IX pioneer, I had to move abroad for the right to play basketball. A half century later, I saw the SHS live game transmission on my laptop. With tears in my eyes, I watched as coaches, players, and fans rose to sing our national anthem in front of our flag.

After tip-off players ran the court, drove to the basket and rebounded with heart. Jackson and her coaching staff inspired an intensity reminiscent of the golden girls of yesterday. Austin stepped up and under from the low post. The James’ girls picked off passes. Who was that tiny guard dishing out assists on a dime? And feisty Harris? Any relation to Marche Harris?

Forgive me for not knowing every player’s names. Forty-four girls are listed on the SHS roster. Regardless of playing time, each participant having the opportunity to represent the Blue and Gold, will learn the same values of teamwork, sacrifice and loyalty .

Like basketball, the Sterlings girl’s 2018 state championship volleyball team was a family affair with sisters, brothers, moms, dads and grandparents.The recipe for success: take the Borum sisters, add the Gould combo and toss in a Lexi Rodriguez libero.

Over the past decades, coaches like Dietz, McKinzie, Smith and so many others dedicated their lives to guiding our youth. The generosity of citizens, the Pete Dillon’s, Mo Duis’, Roscoe Eades, Homer Musgrove’s, Jim Spencer’s of the community worked tirelessly behind the scenes to provide the foundation of excellence.

We never realized how spoiled we were to have access to public recreational centers like Westwood, Duis Center, the YMCA and dozens of parks, Sinnissippi, Kilgore, Platt and a many others we learned to play early on.

Our SHS sports’ facilities (and performing arts auditorium) are so outstanding opponents kiddingly call us Sterling U.

No matter where the alumni ended up, we still feel proud to say, “I’m from Sterling.”

In 2025, women’s sports has unprecedented popularity, media interest and monetary incentives. The Alex Morgan’s, Caitlyn Clark’s and Simone Biles’ inspired millions of girls to be all they can be.

Opportunities abound for the Lexi’s, Maddie’s, Nia’s, and others, who can today aspire to becoming pro athletes, doctors, lawyers, CEO’s and mom’s.

Alone, we cannot hold back the tsunami sideswiping our country, but together we can strengthen the bridges between our families, neighborhoods, schools and communities. Together, hand in hand, do the right thing in the right place to preserve the human values on which we were raised.

Tolerance, integrity, solidarity.

It begins at home.