Viking Disease Strikes Hands and Feet

My old friends and teammates will remember my notorious feet with toes so crooked I could hang upside down by them. Back in high school in Sterling, Illinois my podiatrist, Doctor Heffelfinger, gave me my first foot orthoses. He also showed me how to tape each toe to prevent blisters from forming between my phalanges when playing basketball.

Forty years later, I am still doctoring my crazy feet. Dr. Drevo, my podiatrist in Geneva Switzerland, hand crafted custom-made foot orthotics to help my balance, relieve back pain and slow the progression of Ledderhose Disease. Ledderhose disease (also known as Morbus Ledderhose or plantar fibromatosis) causes nodules to develop in the arches of my feet, which can become painful or grow to a size where they affect walking.

Not surprisingly, my foot doctor also diagnosed Dupuytren’s Contracture, which is similar, because the same type of cords and nodules formed in my hands.

Ledderhose and Dupuytren’s Contracture, known as the Viking Diseases, target the fascia. According to International Dupuytren Society.
"Dupuytren's Contracture is a chronic, progressive fibroproliferative disorder affecting the palmar fascia, leading to permanent flexion deformities of the fingers.”

Typically the ring and pinky finger become permanently locked in bent position.

The condition is more common in Northern European countries where the Vikings settled (hence its nickname.) Typically there, it afflicts about 30% of men over the age of 60 and seems to run in families.

As the daughter of a Norwegian mom and Scottish dad ancestry, I am genetically 89% Scandinavian and Northern European. Key genetic risk factors for Dupuytren's crippling hand disorder can be traced back to Neanderthals’ DNA.

Over the past few years, thanks to Dr. Drevo, my foot condition is under control, but the collagen overgrowth went wild, especially in my left hand.

Only 5% of patients with Dupuytren contractures have similar lesions in the medial plantar fascia of the feet. Lucky me!

At my podiatrist’s appointment in May, I showed Dr. Drevo my bent fingers and crippled hand. He recognized the cords of fibrous tissue puckering under the skin of the palm as Dupuytren’s Contracture and urged me to follow up with a hand specialist right away.

At the Hand Clinic of Geneva, I met Dr. Vakalopoulos who asked, “Would you prefer I speak French, English, Dutch or Greek?”

When he described the complex dissection required to prevent digital nerve injury, it helped that he spoke English. He drew lines across my left hand and explained that he would cut into my palm to remove the chords in my palm and pinky. Unfortunately, my disease had advance too far for him to perform a simpler needle aponevrotomy.

The day after surgery, he confirmed with relief that I retained the sensation in my fingertips.

“The surgery was more difficult than I anticipated,” he said. “You have an aggressive form of Dupuytren’s and the collagen had formed spirals around the nerves in the finger joint.”

Dr. V removed the fast growing collagen forming tough bands in the connective tissue of my hand. Two weeks later, in my follow up appointment, after the nurse removed my bandages, Dr. V inspected his delicate artwork. Fifty-eight stitches zig zagged across my palm and pinky.

“That scar would make a great jigsaw puzzle,” my brother-in-law kidded when he saw a photo of my hand.

On the bright side, I retain bragging rights in my extended Olson, McKinzie, Lechault, Carlson, Miles, Westphal, Zhang family. I hold the record for the most stitches. It will be hard to beat!

Never to be discouraged, I wear my scar like a badge of courage. I show off my left hand as a visual reminder of my proud heritage.

After all, I am a Golden Warrior Viking.

Another Birthday, A Promising Path.

Yeah! I made it. Another birthday. Another year.
But it is getting harder to hang in there.

I am falling behind in the race to survive. I want to walk as far as my feet will carry me, sing as loud as my voice will rise and write as fast as I can before I am gone.

From the top of my skull to the tip of my toes, my body has taken a beating. But, I keep waving the warrior flag and drawing on the strength of my ancestors. I could have, should have, would have died after a rabid skunk bite as a toddler, after a neck breaking fall off a bicycle in Germany, after flipping out of a car speeding down the freeway in France, after splitting my skull in a bad fall at home in Switzerland.

Yet, for some reason, I am still here for another spin around the sun!

Ever the great pretender, I fake my way forward — tackling Lyme’s disease, environmental illness and more accidents than I can count.

I endure physical ailments with self-discipline and endless rehabilitation - physical therapy, chiropractic treatment, massage, heat, ice and talk therapy.

I fought back from broken bones, but how do you recover from a busted brain?

How do I manage a mind that misfires from damage to the frontal lobe, the mastermind that pulls the strings in the back of the brain that fulfills all human functions?

For the past five years, unable to filter sounds, lights, voices, commotion and to curtail the cacophony of background noise that is the essence of life, I hide in a dark, quiet room. I avoid the masses and loud places - stores, arenas, theaters, restaurants, events and situations that create sensory overload.

Brain activity analysis

I wanted to give up. The Functional Neurology Center gave me hope. After their high- tech diagnosis, I attended an intensive week of therapy, a Boot Camp for the brain.

I rode in my “space ship,” the GyroStim. It’s a state of the art, multi-axis rotating chair that works with balance, cognitive and sensory integration and affects proprioception. I underwent Virtual Reality training to rehabilitate balance dysfunction. I zapped pain with Accelerated Recovery and Performance (ARPWave) Neurotherapy and Cranial low level laser treatments. I repeated exercises, inhaled Molecular Hydrogen and completed therapies so bizarre, it felt like sci-fi.

I learned our brains are marvelous mysteries; specialists are understanding more about neuroplasticity every day. FNC is the way of the future.

Neuroplasticity is the ability of the nervous system to change its activity in response to intrinsic or extrinsic stimuli by reorganizing its structure, functions, or connections after injuries, such as a stroke or traumatic brain injury (TBI)".

As I struggle to retrain my left side, jump start my cerebellum, and control my frontal lobe, I work just as hard to reset my attitude.

I am an athlete. I may be broken down, worn-out, defective, but I still “run.”

I accept that I may be in training forever in the only game that matters - life.

With age, injury and illness the body weakens, but the spirit grows strong. I get fed up living in this shit shell of a body, but by golly my soul shines on.

In my dance with death, I appreciate better than most that I am living on borrowed time - we all are.

I should be 6 feet under, instead when dawn breaks every morning, I take a deep breath and whisper, “I am strong. I am grateful. I am here.”

Another Accident? In a Doctor’s Office? You kidding?

Another day, another doc.

Another accident? At the doctor's office? You kidding?

What kind of a klutz am I? Was I born accident prone? Or does it go back to bad balance at my base, from toes, so crooked I could hang by them from a tree.

Who gets taken out by a treadmill in the doc office at the hospital?

At a routine checkup, I mentioned shortness of breath. My primary doctor heard a heart murmur. She insisted I follow up with a cardiologist. Pronto. Eight months later, (you know how long it takes to get an appointment with a specialist) I finally got in with the specialist.

After an EKG and a battery of tests, the cardiologists diagnosed arrhythmia in the upper and lower chambers of the heart. Then she wanted me to take a stress test and walk on a treadmill.

“I need to measure your heart beat under exertion,” she explained as she hooked me up. “Every three minutes, I will increase the speed and incline on the treadmill.”

The first six minutes, I was fine and feeling chuffed to bits. Then at the nine minute level, she cranked up thetempo.

“You still doing okay?” she asked.

“Un huh,” I grunted, huffing and puffing like a steam engine, feeling light-headed and wobbly and cursing myself. (Ever the damn athlete still competing for a better time, I continued gasping for oxygen.)

That’s enough!” the doc exclaimed, “we’ll stop here!”

I stopped.

The treadmill did not.

Before I had time to react, my feet splayed out from under me and my body pitched forward. I hit my chin, my forearms, my elbow and my knees on the rubber mat that kept rotating.

Nooooo, I’m going to be sucked up by the roller.

“Oh no, sorry madame, sorry,” the doctor said. “I am not sure how that happened."

“I’m okay,” I gasped feeling mortified. Who the heck face plants on a treadmill at the cardiologist’s?

After profuse apologies, the doctor sat me on her exam table and told me, “calm down and raise your arm.”

As she fitted the blood pressure cuff, she explained, “I need to record one more reading”.

Of course doc, my BP is too high right now, I wanted to tell her. I just survived a near death experience.

What? Am I hearing clearly. She wants further investigation.

“I am going to set you up for a heart CAT scan to check the valves and heart function and to rule out coronary artery disease,” the cardiologist said, “Don’t worry, this is routine procedure.”

Sure for someone who flunked the treadmill test.

Now once again, I have to squeeze into a white cylinder the size of a toilet paper roll.

Necessary? Really? After a life time of X-rays from accidents and injuries, I am pretty sure, I glow in dark.

“Seriously, doc, “ I lament. “I don’t need more tests. I know why I am short of breath. “You try keeping up with a sixty-nine-year-old Frenchman, who thinks he is 20!”

“Yep, typical,” the hubby says, “Throws her mate under the bus.”

Again!

Raising the Roof, Retiring Maya Moore’s Jersey, Reveling in Women’s Basketball

As an athlete, coming of age in the 70s during Title IX’s infancy, the explosion of women’s basketball today blows my mind.

This summer, I blended into the 19,023 record-breaking crowd at Target Center in Minneapolis to honor the Minnesota Lynx legend Maya Moore.

Before tip off, I trembled. Awed, I watched as people of all ages, races and backgrounds cheered, wearing shirts engraved with the names and numbers of their favorite FEMALE players.

How fitting that Iowa’s Caitlyn Clark’s Indiana Fever team faced off with the Lynx on the night they retired her idol’s number 23 jersey?

Caitlyn grew up dreaming of playing basketball like Maya one day.

Decades ago, girls like me and my sisters, grew up dreaming of playing at all. Of just being allowed on the court.

This profound moment in time was magic. Especially for my family.

Like Maya, I once wore the number 23.

So did my little sister.

Maya was a star at every level, on her high school team, at the storied women’s basketball program at UCONN, and in the WNBA leading the Lynx to 4 national championships.

By comparison, I couldn’t even play on a team until my senior year of high school. When I played college ball in the 70’s, we were ridiculed by peers, scorned by the NCAA. After college, I signed a contract with hard times to compete in a fledgling Women’s Professional Basketball League (WBL). We played in empty arenas, hitched rides to practice, survived on crackers and never got paid. In the late 70s female ball players were oddities, a pro league of our own insane, but our crazy collective dream gave birth to the 1996 WNBA.

Along with hundreds of courageous pioneers, our sacrifices helped thread together the stunning tapestry of women’s basketball that led to this day, this time, this moment.

In the summer 1999, my sister and I took our daughters to our first WNBA game in the Lynx inaugural season. There were fans, but also enough empty seats that we were able to move close enough to the court for my daughter to catch a free t-shirt.

On August 24, 2024, at Minnesota’s Target Center, as I sat on the upper level of the packed arena, pandemonium erupted as fans paid tribute to their past hero and applauded the exploits of their present star, both catalysts in revolutionizing the popularity of the women’s game.

It’s a far cry from my day, when I played at Madison Square Garden in an arena, so empty, the sound of the ball bouncing echoed through the rafters.

We cannot know who we are if we do not know where we came from.

Before the Lynx/Fever game, when I stood for our national anthem, I raised my hand to my heart and nodded to our past stars.

We stand on the shoulders of those who came before us.

Thanks to Title IX, a girl grows up never questioning her right to be all she can be.
That access to opportunity began in the heartland for me, Maya, and countless other little girls.

When we were kids, women were not only absent from the gym. We didn’t know any female doctors, lawyers or CEOs. We fought for the right to play ball and paved the way for our highflying daughters of today, including my own daughter who was a division III athlete on her way to becoming a doctor.

What made Maya Moore extraordinary, was not just her supreme athleticism, but her human spirit embracing equality and battling for social justice that led to the liberation of a man imprisoned for crime he never committed. Maya, the league’s best player, retired from the game at height of her success, to fight for the rights of others.

After the game, Maya Moore Irons addressed former teammates and fans as they raised her number 23 to the rafters. Known for her illustrious MVP career, Maya stands out most, not for her accolades on the court, but for the person she is off it.

“There’s no end to possibilities, when a group of women together bring it!” She said blinking back tears. “Let our unity go beyond Target Center. Show your love and appreciation for those around you!”

“My life,” she added“is an example of what happens when we love a little girl well.”

I, too, am an example of a little girl being loved well. I grew up first in my adoring McKinzie family, then my hometown, Sterling, my Illinois State University community, and my country, the USA. As an adult, I dedicated my life to helping teens reach their dreams on the hard courts and in the classroom across Europe. Never in my wildest fantasy could I imagine how far the game took me and how far we have come.

Basketball, like life, is about paying it forward. Passing it on.

The current Lynx icon, Napheesa Collier, grew up in Jefferson City, just like Maya. Somewhere out there is a little girl who looks at Phee and dreams of being a WNBA star. I look back at my younger self and think “you did good girl”.

We struggled too hard for too long.

We are NEVER going back.

Women’s History Month, March Madness, Acknowledging Ghosts of Women’s Basketball

Half a century ago, no one paid any attention when my friends and I played basketball. We got kicked off the court, but shoved our way back in the game, clearing the lane for Caitlin Clark, Angel Reese, Paige Bueckers, Juju Watkins and the contemporary stars of today.

Over the decades, women’s opportunities grew thousandfold because the cultural landscape changed with media exposure. Today girls never question their right to play basketball; they have female sport icons to emulate.

Born at the turn of the twenty-first century, Caitlin Clark grew up idolizing role models. As early as second grade, she wrote about her goal to play in the WNBA. As Caitlin reached the pinnacle of her college career at Iowa, she helped pack arenas. America watched, mesmerized by her engaging personality, athleticism, and exciting style of play.

In the sixties, in my own second grade story I wrote about the lockers playing a basketball game against the waste baskets during recess. Back then, I imagined inanimate objects in school had a greater chance of competing in the game than girls. Yet, like my sports loving peers, we shot hoops anyway creating a path so new that no one envisioned its existence.

The female hoopsters of my era grew up invisible in a vacuum of time.

As a high school junior, we were allowed to compete in three basketball games. My senior season, we played 14 games and won a conference title, which at the time was more than most schools where girls’ sports remained nonexistent. No one registered my Sterling High school records. Why would they? Still, I know the next generation, including my biological little sister, wanted to play basketball like me. They did. In 1977, they became the first IHSA Sterling Girls State Championship team.

Back in my day, without specialists, and pre/post season programs, girls like me had to be our own personal trainers, dieticians, strength coaches and shot doctors. My dad, Coach Jim McKinzie, gave me a head start by perfecting my jump shot and fundamentals. Workouts with coach, Phil Smith, helped me reach the pro level.

ISU Coach Jill Hutchison presenting Wade Trophy Finalist 1979. Best national basketball player award named after Coach Margaret Wade, 3-time Delta State National Champion.

I attended college in the 70s and received Illinois State’s first athletic scholarship (1978.) Right place. Right time. Right people. My coach, Jill Hutchison and her ISU colleagues paved the way for the groundbreaking reform Title IX that mandated equal opportunity for women in college athletics. Her graduate research dispelled the myth that women’s hearts would explode by playing full court. Hence the girl’s 3 on 3 half court game gave way to full court play in 1970. In 1972 Hutchison, along with ISU’s Women’s Intercollegiate Athletics director, created the first women’s national basketball championship.

This year, when Caitlin Clark, broke the all-time NCAA scoring record, she acknowledged Lynette Woodard’s scoring record during the Association for Intercollegiate Athletics for Women (AIAW) era.

“By 1981 the AIAW staged 41 championships in 19 sports and put women’s basketball on national television,” Sally Jenkins wrote in the Washington Post February 24, 2024. “Which is exactly when the NCAA swooped in with a hostile takeover, pressuring universities into abandoning the AIAW, to absorb what the women had built.“

I played ball in the AIAW era. In the infancy of Title IX, as collegiate athletes, we pushed our bodies, played hard, pulled all-nighters and still made it to class. We drove ourselves cross country in campus station wagons to compete against Michigan, Indiana, Ohio State and today’s Big Ten schools.

Charlotte Lewis ISU star center 1976 Olympian

In the mid 70s, we knew women could star in showtime. Our ISU center, the late Charlotte Lewis, dunked in practice. Our point guard Vonnie Tomich, a WBL All-Star, knocked down treys from downtown long before the three-point shot was added to the rule book.

Marketing? Sh**! No one in corporate America wanted to promote brands with no names like us. Name Image Likeness (NIL) did not exist. Social media, zilch. Media exposure, nada. Our only fans - loyal families and friends.

Today thousands of people tune in to women’s basketball obliterating the old records of attendance and viewership.

By comparison, in the late seventies, WBL (precursor to the WNBA) players’ paychecks bounced months before the league declared bankruptcy. Back then, no one wanted to watch a bunch of “amazon women” play men’s favorite game.

My sister, Karen, first Illinois State High School Championship basketball player, daughter, Hannah, Minnesota High School State Champion rugby player at sold out Iowa - Nebraska women’s basketball game.

We sacrificed our bodies to chase a dream so farfetched and ahead of its time that we were ridiculed. Those scars of scorn remain etched in our souls. But without us, Luisa Harris, Lynnette Woodard and the superstars of the AIAW and WBL era, there would be no Caitlin Clark, Angel Reese, Paige Bueckers or Juju Watkins. For decades women’s sports have been an afterthought, if considered at all. Thanks to media exposure and exciting play, fans now argue about the officiating, players trash talk opponents, and the women’s game is the talk of the town.

Gender disparity still exist in colleges, corporations, and societies, but the icons of the Caitlin Clark era have demonstrated women’s sport will grow if given a chance.

“Build it and they will come,” said Hutchison, Illinois State University’s winningest basketball coach, Women’s Basketball Hall of Fame recipient (2009) and a true visionary of the game.

After a long, arduous journey from the AIAW to Title XI to the NCAA Final Four to the WNBA, the ghosts of the game are hooting and hollering and dancing in the rafters. Forget bracket standings. Ignore NCAA results. Celebrate Final Score. Women Win!