When Real Life Hits, Change Plans, Pick Up the Pieces, Keep Plugging

I’ve spent more time living abroad than I have been a US resident, so why now, fifty years later, after dozens of flights, was I scared to fly alone?

Walking through an airport after a traumatic brain injury (TBI), with the bright lights, loud sounds and noisy crowds, is like bouncing around in a pinball machine. Usually my Frenchman guided me through it, but Gerald washed his passport for the 2nd time in 4 years and his replacement did not arrive on time. Consequently, I flew solo from Geneva to Amsterdam to Minneapolis. After getting through customs, I fell into my daughter’s arms in Minnesota.

I did it! Euphoria was short lived.

With my health history, I never make plans ahead; I never know if my body can hold up for the event. Yet, this summer, I swore I’d return to Sterling to spend time with my 92-year-old mom and visit old friends from high school and college.

I never made it back home!

What happened? Another seizure? A stroke? Mega jet lag?

In the middle of the night, disoriented from sleep deprivation, I turned left instead of right coming out of the bathroom at Nathalie’s and tumbled. One misstep led to another bad fall and an ambulance ride to my least favorite place - the hospital.

Forty-eight hours after landing, I regained consciousness in Minneapolis’ major trauma center (HCMC). Bruised from head to toe, the ER doctor sent me for CT scan, MRI and X-rays, stitched my eyebrow, slipped my shoulder in a sling and strapped my neck in a Miami J immobilizing collar. Immediate action. Super efficient. Life saving steps.

As I lay on the gurney in the trauma bay, various specialists came in addressing my numerous injuries - subdural hematoma (brain bleed), scapula and acromion fracture (broken shoulder), broken rib, fractured skull - and explained they were admitting me to the hospital. I turned to my daughter and asked “are we going home now?”

Instead of taking me home (an absurd request now understanding the extent of my injuries) she called my sisters who swooped in bringing hope. They took turns holding my hand through the terrifying hospital nights. They advocated for explanations and requested more ice, more pain med, more pillows.

Meanwhile, my daughter communicated with my care team and translated medical jargon while trying to recover from the trauma of finding her mom in a pool of blood at the bottom of the stairs, and my husband fought for a space on a flight over the Big Pond.

A week later, with guarantees of round-the-clock care from my husband, daughter and sisters, I was released.

When I was finally well enough to look at Facebook, I saw photos of classmates gathered at the Railside Bar and Grill in Nelson and regretted the fun I’d missed.

I hold a soft spot in my heart for SHS class of ’75 and have memories frozen in snapshots of that interlude of adolescence.

After my high school non-reunion, I had planned on reuniting with “The Family,” my “sisters”, those besties sharing a townhouse during senior year of college. Though we never lived under the same roof again, we remained connected forever.

With such fun summer plans, why did I hang out in the hospital instead?

My French sister-in-law explained it best, “The angels were drunk the day you were born!”

Drunk angels or no, I never liked being told I can’t do things. If I couldn’t make it to my reunions, I was determined to get to the cabin and the healing waters of the lake.

The challenge? So many restrictions? “Don’t turn your head. Don’t raise your right arm. Don’t lift anything heavier than a coffee cup.” My neck brace, worn 24/7 could get wet, but then changing the pads required two people and an engineering degree. Oh, and I had to sit still. Not my forte.

“Biking, swimming and skiing are out of the question! But can I walk in the lake?” I asked. The doctor never answered, just chuckled.

My family made sure my wish came true. With my chauffeur at the wheel, I laid flat in the backseat squeezed between a cooler, guitar and beach towels.

 

When we arrived at the cabin, I stepped off shore and waded up to my knees, my waist, my shoulders. Then weightlessly, I slid one foot in front of the other.

With pain lancing through my skull and spine, I walked on water.

“You can do it!” I shouted to the heavens. My dad’s voice echoed back from the timbers, “You can!”

Every evening, as stars sparkled over still waters, I curled up on the couch listening to the stories of my ancestors. I drifted to sleep, holding mom’s hand, cocooned in a circle of love everlasting. Back in nature, surrounded by family, I processed my losses with hope renewed. Ready to begin my long journey to healing again.

Family helps with first walk

Surviving Driving in Europe’s Mountains

My dad, once a driver’s ed instructor, taught me to drive on the backroads of Illinois and Wisconsin. I’ve never had a collision as a driver, but as a passenger, I have been in major accidents, one for each time period of my life from adolescence, to college, to the pro’s, to living abroad.

I thought passing my drivers license in Paris France a decade after my basketball career ended in a car accident was the scariest thing I’d ever done. But getting behind the wheel after a major brain surgery in Switzerland takes balls.

Four decades after a traumatic brain injury, I have to learn how to drive again. Never one to shy away from a challenge, I take my driving lessons in the Jura Mountains where we now live.

The drive from Nyon, down by the lake, is a six and a half mile climb on a treacherous road with sixty curves, six of which are hairpin turns.

73 injured and 4 dead

marks the number of accidents

Before we begin the ascent, a sign warns that 73 were injured and 4 people died in the last decade. At every sharp turn, road markers remind driver where an accident or death occurred on the Route Blanche aka the corkscrew.

On weekends youth play motorcycle madness, a type of Russian roulette where they attempt to see who can beat the record for the fastest up or down.

If that isn’t challenging enough for other vehicles, the rugged route is also a favorite for hardcore bicyclists.

Luckily, I can practice my skills on the route d'Arzier, the other road from town that has wider turns and loops through villages.

Allez, allez … faster!" Gerald insists.

“I know,” I answer, “I am going at a speed where I feel in control.”

“Okay, Pat, but we haven’t left the parking lot yet!”

When I turn onto the highway, clutching the steering wheel, Gerald insists that I loosen up and use finger tip control. I hit the brakes before every curve, lean into every corner.

“Focus straight ahead. Don’t look at cars coming the opposite direction!” Gerald barks. “If you keep swerving into the field, you’ll hit a cow!”

Invariably as soon as I see another vehicle approaching, I jerk the wheel and hit the brakes, as if I am on Mr. Toad’s wild ride at a Disney park.

“Don’t cross your hands when turning the wheel, you could lose control,”
he reminds me,“If you squeeze the steering wheel any harder, you’ll break it. Besides, it's is illegal in this country and could cost you  CHF 120 a ($135) fine.”

“Relax. Lean back. You’re sitting on the dashboard!”

Arrhhh.

As I swerve around curves, cling to the mountain side and try to maintain the 50 mile an hour speed limit, I scream, “Wheeee, I feel like a race car driver!”

Obstacles abound: logging trucks, farm vehicles, train crossroads, pedestrian crosswalks, motorcycles, buses, cars, campers and bicycles.

But the greatest distraction is the incredible view. The spectacular Swiss panorama makes it difficult to focus on the highway. To my right the snow-covered Alps rise above Lake Geneva. Mont-Blanc, the majestic crowned jewel, reigns over the land. If I look to my left, cows graze in green pastures and golden rapeseed fields wave in the wind.

Honestly, I don’t think I will ever master driving in Europe.

I’ll keep practicing, but the world will be safer, if I just ride shotgun daydreaming, window gazing, writing stories about my sublime Switzerland.

 

 

Happy Birthday to Me, E.T.

Oh dear, how do I tell my 91-year-old mother that she gave birth to an extraterrestrial being? What else could explain my extraordinary quirks, peculiar ailments, and uncanny ability to survive against all odds?

I’ve recovered from accidents that no mortal should have survived. I suffer from maladies so bizarre that no one has ever heard of them before.

Then again, how many people survived a rabid skunk bite as a toddler and lived to tell the tale?

My latest episode involved the right side of my mouth festering until my gum line resembled the embers of a dying fire. A thread under my lip pulled my gum away from my tooth, exposing the root.

My Swiss dentist pried open my mouth and exclaimed in awe, “Très intéressant! I’ll do a frenectomy!”

Frenectomy?

In the past, when diagnosed with other strange ailments, I had no idea what my American, French, German, Greek and Swiss doctors were talking about.

I’ve always been different.

After all, I was born in Sandwich.

“Which kind? Baloney!” friends teased.

According to my mother, I was the only planned baby of her four children.

Good grief! Who in their right mind would have planned to birth an extraterrestrial being?

Fortunately, back in Sandwich in 1957, I was a bargain baby! The doctor who delivered me charged my folks only 50 bucks.

Since then, I’ve cost a fortune!

Braces, glasses, orthodontia, orthotics, and umpteen surgeries. Disintegrating discs, temporal mandible dysfunction, neuroborreliosis. I had strange conditions before they became common knowledge. My treatments, considered controversial quackery at the time, have become part of standard care, like chiropractic and TMJ dental treatment.

Why me?

Blame it on that rabid skunk bite!

My poor mother! How did she survive my childhood?

My poor Frenchman! How does he endure my adulthood?

After each calamity, he picked up the pieces, paid medical bills and waited for me to heal. With his help, I am still ticking, albeit slowly.

Today, doctors suspect I was born with Ehlers-Danlos Syndrome (EDS). EDS? Huh? It’s part of a group of genetic connective tissue disorders, which could help explain
my proprioception issues and propensity for falls.

We’re all unique beings, trying to move forward, stay strong, and beat the odds.

No one chooses their family, the genes they inherit, the beliefs they assimilate, or where they grow up. No one can predict what physical, emotional, and mental challenges they’ll face.

Wouldn’t it be easier if we didn’t see ourselves only as Democrats or Republicans, Americans, Europeans, Asians, Africans, Indians, Australians, Muslims, Jews, or Christians?

Could we live better harmony if we didn’t identify so much with one religion, nationality, race, or ethnicity, but more as tiny specks in the universe?

What if we all came from somewhere beyond Earth?

How’s this for conspiracy theory?

What if we’re all aliens?

Who knows?

I am here still questioning, still yearning, still learning.

Time is running out. I may never get it right. For now, I exist in a state of grace, warts and all, grateful to be here even during these troubled times.

 

 

Thank you, my beloved mother, for bringing me into existence and guiding my path!

Merci mille fois mon courageux français for staying by my side.

Happy Birthday to me, E.T.

Jump Start Brain and Body – Learn a New Sport

Feeling old, achy and foggy brained? Experts say learning a new skill is recommended for our rusty bodies and aging brains. For me, relearning old skills is equally valuable. It is never more important than after suffering a traumatic brain injury (TBI) which can effect spatial awareness, balance, proprioception, executive function, listening, speaking and emotional stability.

Like so many people after injury, illness and accidents, I was forced to reframe my life. Once I retired from playing pro ball, I dreamed would learn to scuba dive, alpine ski and surf. I’d run marathons and bike mountains.

Well, that hasn’t been an option for decades.

So when my chiropractor in Geneva (Switzerland) suggested that I try “rope flow” to help strengthen my core, align my back, retrain my brain to better coordinate both hemispheres and work my lazy left side, I was all ears.

In Dr. G’s office, I watched in awe as he demonstrated swinging a heavy rope around his body.

“Jump rope sans the jump for injured adults!” I said.

“Actually, a heavier marine rope like sailors use works better,” Dr. G explained. “The sailboat boutique across Lake Geneva in Nyon carries all different sizes.”

Then he went onto explain the history.

“David Weck, an American, created rope flow to help people recover rotational movement and to reinforce how we walk, run and move. Rope wave, quickly adopted by elite athletes and movement coaches, has become a valuable training tool for improving mobility symmetry, coordination and striking power.”

At first glance, rope wave looks easy. It’s not. It involves swinging a rope around your body in coordinated patterns like figure-eights, while shifting your weight and rotating your spine, shoulders, and hips with rhythm and control.

I was delighted to discover a game that I can play without getting hurt as long as I don’t whip myself on the back of my legs or lips.

If you perform rope flow properly, the rapid rhythm builds a smooth, effortless coordination across both sides of the body. Rope flow is symmetrical. You rotate both left and right, retraining your non-dominant side and this helps smooth out imbalances.

YouTube player

Rope flow is ingenious for its affordability, convenience, practicality and simplicity. This portable habit helps rewire the way I relate to my body. It is probably even more valuable for people like me who suffer from the effects of a stroke or TBI where message systems in the brain are damaged and to weakness on one side of the body.

After my time at the Functional Neurology Clinic in Minnesota, I learned how neuroplasticity allows the brain repair itself. After my brain surgery, messages did not get to my left side. Rope flow trains the brain and the body simultaneously and I would recommend it for anyone recovering from a TBI.

I am learning to accept my limitations, no more hooping, running, jumping. No kayaking, canoeing, golf, tennis, pickle ball or any asymmetric sport requiring lateral movement. For me, traveling in cars and planes or even sitting must be minimized.

So I was encouraged to finally find a sport I can perform with my broken body; it’s even good for me.

Granted I look a bit crazy, but who cares? I swing my rope, whistle like my dad used to, hang out with cows up in mountain meadows and admire the panoramic Alps.

It is highly unlikely that you can find an instructor in your area, but David Weck, Tim Shieff and other experts offer detailed videos breaking down movement into steps.

So pick up a rope, put on your favorite song and swivel those hips.

Yahoo! Clear the way! Look out! I’ll lasso you…my first dream was to be a cowgirl!

Health Care Professionals Deserve Standing Ovation

I stopped blogging when overgrown connective tissue crippled my fingers from Dupuytren’s Contracture, a hereditary condition. A hand surgeon split my palm open, removed the diseased tissue and attempted to straighten my little finger. The dozens of ragged stitches across my hand healed, but on top of muscle memory, the tendons and ligaments pulled my finger back into a clawed position in a protective natural reaction.

If my pinky was the only problem, I could cope, but while addressing other ongoing health issues, doctors concluded my spine, damaged in too many areas, can’t be fixed. Nothing more can be done medically to alleviate my back problems. My knees are kaput too.

I limp along trying to remain upbeat.

And failing.

Never a candidate for back surgery, knee replacements loom ahead and my finger may be contracted forever. Un-huh. No way. No pity party for me. A hearty can-do cheer would be welcomed.

When my surgeon suggested I see an ergo-therapist,(occupational therapist, aka a hand specialist) for the first time, I thought, “oh no, another specialist!”

Then, I gave it a go.

After a half a dozen visits, the ergo-therapist put my hand in thin, plastic glove and dipped it in warm, melted wax. Then she kneaded my palm and finger to break up scar tissue, restore mobility and coax tendons to loosen their hold on the joint.

I fought back tears of frustration.

“Go ahead. Cry,” she said, patting my arm. “Progress is slow, so hard to see or measure.”

While I gathered my composure, she crafted splints to straighten my finger.

“Wear the hard, plastic orthotic at night; the velcro one in the day,” she instructed. “If it’s too uncomfortable, take it off. Wiggle your fingers. Go for a walk. Relax. Sometimes our bodies need to heal in their own time.”

My physical therapists and chiropractors, too, have always emphasized that mind/body connection. After my accidents, they partnered with me to help me recover and regain as much mobility as possible.

Modern medicine has evolved thousand-fold, but healing remains an ancient art. Those called to the profession — like my son, my daughter, my nieces — are gifted.

Lately, the medical field has been broadsided. Healthcare workers face endless scrutiny and skepticism under a tsunami of misinformation on social media and inaccurate directives from the authorities. That, along with major funding and resource cuts, make their job even harder.

Skilled surgeons helped spare my life, but it was auxiliary health care professionals — therapists, chiropractors, masseurs, counselors, nurses— that saved my broken heart when I wanted to give up.

Never underestimate the healing power of those dedicated people, whose soothing voice and gentle touch (like my “hand whisperer”) ease suffering and save souls.

 

They restored my faith in humanity.

Kindness matters.

More than ever.

Keep Walking

 

“I considered my options
There was only one I knew
There was always only one.

To keep walking.”

from Brave Enough by Cheryl Strayed

 

 

So simple, yet so profound. Trapped in my royal blue funk, regretting, lamenting, mourning for all the things I can no longer do, I take comfort in the words of a woman who walked the Pacific North Trail solo and chronicled her journey in her best selling memoir Wild.

I can’t ski, skate, bike, play basketball, or pickle ball or any kind of ball game. I can’t hop, skip, or jump. But I can stand tall. Shoulders back, chin up, head high. I can put one foot in front of the other.

Why is that so hard to do? I feel like rigor mortis set in while I sleep. When I wake up each morning, I am caught by surprise. So I roll out of bed, crawl onto my yoga mat, stretch my stiff limbs and marvel.

I am still here.

Alive.

Each new day is a clean slate. A chance to get it right.

I remember to smile, be kind, offer encouragement. Someone else is in much worse shape, facing far greater trials, struggling to survive in tougher circumstances.

Today I had an epiphany.

I am an athlete. Still. Only now I am training for life.
Though I will never again play my beloved ball games, I can raise my arms, clap my hands, stomp my feet, wiggle my hips, shake my booty. I can still dance.

I inherited the iron will of my ancestors whose footprints I try so hard to emulate in spite of setbacks.

My father and grandfather, good sportsmen, great coaches, dedicated their lives to helping others find their way and offered me stellar examples of resiliency. They remained athletes at heart, determined to stay as active as their bodies would allow until their final hours.

I can still move.

I may be slower, stiffer, clumsier, but I can sit, stand and even roll over like Rover.

I’m lucky to be here!

Right now.

Today.

We, human beings, take so much for granted until it’s gone.

Aging can be a losing game. Combined with bad luck, terrible accidents, and bizarre ailments, no one can perceive what challenges await.

Today is our only guarantee.

Seize the moment.

Be brave enough to take another step.

As a child I hated to walk, I would rather run. Walking was too slow, too boring. Now walking saves my soul.

We are all just walking and walking, trying our best to find our way.

To stay the course.

To step forward.

To believe.

Eventually all roads lead to the mountaintop.