Inauguration Celebrating Best of American Story

“Our history has been a constant struggle between the American ideal that we are all created equal and the harsh, ugly reality that racism, nativism, fear, and demonization have long torn us apart."

"The battle is perennial. Victory is never assured.Through the Civil War, the Great Depression, World Wars, 9/11, through struggle, sacrifice, and setbacks, our "better angels" have always prevailed.“

On Jan 20, President Biden’s inaugural speech offered hope signaling a new beginning in the American Story celebration. Just 2 weeks ago during one of the darkest days in our history, Trump denied election results and incited insurrection at our Capitol building to overthrow the government, threatening our 200 years old democracy, now we begin to heal and move forward.

After serving USA for 30 years as senator, 2 terms as VP alongside Obama, Biden took oath at age 78 to become our oldest President. His words, coherent and articulate, enflamed with passion and compassion, pleaded for unity and comprehension in a nation divided.

Kamala Harris, lost the democratic nomination but won the ticket as Biden’s VP and broke the glass ceiling by becoming the 1st female vice president, 1st African-American and 1st Asian-AmericanVP. She inspired young girls everywhere to dream.

And 22-year-old Amanda Gorman, the youngest ever national poet laureate, compensated for an auditory processing disorder and held nation spellbound with her lyrical words, as she recited “The Hill We Climb” to the world.

Oldest President, first ever African-Asian-American female VP and youngest poet laureate. Old, Young, Black, White. This is America. Land of opportunity. For all.

Gorman. who overcame a speech impediment, stood tall; her voice like a healing balm, rang steady in a soothing cadence and natural rhythm.

America boasts of sports icons, movie stars, media moguls, but our real champions are these folks who fought the odds and overcame terrific personal losses to keep fighting.

On a smaller scale, heroes exist within our own families. Like my maternal grandparents who came to America for a better life. When my Norwegian grandpa Gustav lost his job during the Great Depression, he walked to the Chicago Public Library everyday to read books because he always wanted to be educated but never had the opportunity.

Or my paternal grandparents who lost 2 sons. Instead of becoming bitter, they dedicated their lives as teachers and college coaches guiding other people’s sons into adulthood.

Or my parents who spent their careers as educators in the same community not seeking praise, but finding peace knowing the value in helping a child read better, stand taller, be braver.

Or me. Losing everything. Beginning again. Not once. But twice. Learning to grip, walk, talk, read and write. Never giving up in spite of great physical pain and emotional despair, looking outside of self to encourage another to get up and go on too. To continue my mission inspiring courage, breaking barriers, creating connections internationally.

That is our American story. Perseverance. Pioneer spirit. Resiliency. Courage. Tolerance. To rise up again. To rebuild Together. Hand in hand. As Biden concluded in his speech:

Here we stand, in the shadow of a Capitol dome that was completed amid the Civil War, when the Union itself hung in the balance.
Yet we endured and we prevailed.
…/…
And here we stand, just days after a riotous mob thought they could use violence to silence the will of the people, to stop the work of our democracy, and to drive us from this sacred ground.
That did not happen.
It will never happen.
…/…
And together, we shall write an American story of hope, not fear.
Of unity, not division.
Of light, not darkness.
An American story of decency and dignity.
…/…
May this be the story that guides us.
The story that inspires us.

Link to the full speech video

This is our America.

Horses Help Patients Heal from Brain Surgery

Just a few weeks after my brain trauma and surgery, my physical therapists in the rehab hospital, The Lavigny Institution, recommended a pony ride to help me heal. My entourage at home found that suggestion amusing as they pictured me on a pony with my long legs dragging the dirt.

I was dumbfounded to find out my rehab center had its own stable, vineyard and farm. Dating back to 1906, over a century, a rich Pasteur in Vaud Canton Charles Subilia troubled by the death of an epileptic boy dedicated his fortune to creating an asylum for epileptics. The center now grown to over 900 employees specialized in treating epileptics and stroke victims comes as no surprise, but the fact they owned their own stable and offered hippo therapy seemed unbelievable.

Though the use of equine-assisted therapy (EAT) involve activities with horses to promote human physical and mental health after injury and illness has roots in antiquity, I had never heard of it.

“The movement of a horse side to side, forward to back hip rotations are what humans need to do when walking,” my PT explained. “Riding a horse helps promote that movement that we forget after brain accidents.”

The horse’s pelvis moves in the same three ways as a human pelvis does creating a movement pattern similar to human walking.

My physical therapists were so enthusiastic they could get me to agree to anything, but on the day I was scheduled for pony therapy I had second thoughts. Was I crazy? I hadn’t ridden a horse in over 50 years. But there was no way I could fall off. To mount the pony, which I was surprised to see had grown overnight to the size of a horse, I walked up a ramp and they brought the horse to a stand beside me.

A stable girl with years of experience took the reins and led the horse down a country lanes. Therapists walked either side of me.

“Lean left , lean right, more hip movement, less upper body, pull back upper shoulders, sit up straight in saddle,” Benoit instructed while I tried to let my body sway into the horse’s natural rhythm . Benoit modified the horse’s movement to promote specific responses within the me, while he simultaneously instructed a fellow PT.

In addition to the physical contact with the animal, the horse also provided sensory input aiding my body’s ability to sense its location, movements, and actions in a continuous loop of feedback between sensory receptors throughout my body and my nervous system.

As I rode down the trail, my worries melted. My rigid, body melted into the movement of the horse while my mind blended into the healing atmosphere of nature. As wind washed over my face, golden fields of wheat undulated in the winds like a Hawaiians dancers hips swaying in grass skirts.

Lavender fields and cobalt blue ponds looked as vivid as a Van Gogh paintings. Baby goats rollicked at their mamas heels and cows, the color of toasted marshmallows, grazed in lush green valleys. The entire vista opened up to the majestic Lake Geneva surrounded by the imposing Alps, which looked like sea creatures rising up from the deep.

The feel of the breeze, the steady rocking of the horse and the mesmerizing view filled me profound peace allowing total liberation from my broken body and bruised mind and gave me hope.

“The Lavigny Institution supports each person as a whole: physical, psychic, intellectual, emotional and spiritual to develop autonomy and social relationships, as well as foster the development of the person.”

Therapists in Rehab Hospital Inspire Hope

Unfortunately at different times in my life, I have been hospitalized in 4 different countries, but none of them could compare to my six week stay in Lavigny, Switzerland.

After nearly 2 months in the hospital, I am still trying to piece together what happened to me. I don’t remember any details about my fall, about the harrowing helicopter transport and emergency brain surgery or the first 2 hospitals where I laid in a bed too weak to stand, too confused to carry on a conversation to process everything I was facing.

Fortunately over time, I began to heal. But I am the first to admit I did not do it alone. I was transferred to the 3rd hospital, Lavigny, a neurological rehabilitation center specializing in treatment for epilepsy, stroke victims and brain injury. Set in the rolling hills between the Jura Mountains and Lake Geneva, the bucolic countryside with majestic views filled me with peace, but my therapists stoked the inner fire to thrive.

At Lavigny, I relearned self care, how to use muscles properly and how to regain my voice after intubation during surgery. Everyone was so encouraging and kind and young.

When I arrived at Lavigny, I felt as old as the mountains surrounding me. Tasks that I once completed effortlessly, seemed insurmountable. Maneuvering down the hall 30 feet to the dining rooms without toppling over felt as exhausting as completing a marathon.

The first thing the nurses and therapists did was get me out of bed. With words of support, they refused to let me mope around and feel sorry for myself. We became a team with a common goal— make me strong enough to function independently so I could go home.

Therapist in Rehab Hospital Inspire Hope

The village of Lavigny, with the hospital in foreground

At times I felt like giving up, but my team of therapists wouldn’t let me. With their never ending encouragement, I took one step forward and then another. Nadine taught me how take a shower safely, how to tie my shoes and how use eating utensils again.

Carla and Benoit helped me regain balance and walk without staggering side to side like a drunk. They trained me to lift my left arm again and to make a fist with my left hand. Manon helped me recover my voice, which squeaked as if I had just coached a European championship.
No one knew for sure how much of my abilities I could recover or how quickly, but no one ever let on they had any doubt that I would return to normal, so I never doubted either. That combined with the positive verbal encouragement from loved ones’ nightly phone calls surrounded me with positivity.

Lisa, my neuropsychologist, explained what trauma does to the brain and helped me regain its function even before I realized it wasn’t working. At first I wanted to lash out at all my therapists in frustration over my loss of abilities, ashamed of my dependency, my physical weakness, my mental handicaps. I complained to Gerald over the phone, “They treat me like a baby. They will keep me here forever.” It was as though I couldn’t admit my loss of skills, losses I was reminded of when I saw other patients slumped over in wheel chairs, hobbling behind walkers, unable to walk, to talk, to swallow. Contrary to my misperception, each action was a challenge to become more self-reliant, so I could live independently again.

Each day was the same rigorous routine, 5 intense 45 minutes of therapy — PT, OT, neuropsych, speech therapy —that left me feeling so exhausted between sessions that I fell asleep between each one.

When I was finally released from the hospital, I was convinced that my therapies and my team’s commitment and care, literally saved my life. I was filled with gratitude to Lavigny and its staff.

When I met with the psychiatrist in charge of my case after another month of therapy as an outpatient, he reminded me,”The therapists certainly helped you reach your goals, but what they all told me was that it was your will power and drive that made the biggest difference to come back from such a devastating accident.”

In retrospect I am not sure how I overcame such great odds alone in a hospital in Switzerland during a global pandemic. I wish I could impart that combined force – family, therapists and iron will to readers who may be facing insurmountable odds in their battles against cancer, illness, life altering accidents. The human spirit is so fragile, life challenges so insurmountable, our mortality so fleeting, but don’t give up. Never underestimate the power of love and the role you play in your recovery, in your capacity to heal .

I will always credit the therapists at Lavigny with giving me back my dignity. They celebrated every success – the day I could raise a glass to my lips, butter my own bread and walk to the dining hall without assistance- was worthy of a standing ovation. They acknowledged the courage it took each day to get out of bed and confront the shadow of my past and I will be forever grateful.

Pat leaving the hospital

Fighting Back After Chronic Illness Knock Out

Apologies to my loyal readers, friends and family for being out of touch, off line, disconnected. Estranged from everyone, I shut down, closed off my heart and buried hope.

When you suffer from chronic illness, you exist in a parallel universe of pain. A pain that is magnified when so misunderstood by the medical community like in chronic fatigue syndrome, fibromyalgia, environmental illness, Lyme disease and other conditions that are hard to diagnose and even harder to treat.

Awaiting answers we muddle along until flare ups knock us out again and again.

The earth tilts under my feet. My eyes roll back in my head. Shooting pains fire off like missiles in my muscles. Ants crawl under my skin. My stomach cramps. My joints throb. My throat aches. My lungs burn. My vision blurs. My head pounds.

My brain, an overinflated balloon, presses against my skull, like it will burst.

An old athlete, I can cope with physical pain, but enduring the tricks of my mind becomes unbearable. I forget what I just said. Phone numbers, street addresses, friends’ names elude me.

As bad bugs hijack my brain, I stare ahead like a deer in headlights unable to process thoughts. My tongue twists on the phrases that spew out sometimes in French, sometimes English. I repeat myself like a silly parrot, jumbling sentences, confusing words.

Trapped in bed, the walls close in. I reach for my survival kit — a Kindle, laptop, notebook, cell phone, water bottle. I calm my racing heart by counting blessings — family to cherish, food on the table, roof overhead.

Like a human guinea pig, I sign on for another drug trial, relying on an equally desperate Facebook group of strangers, who battle the same misunderstood multi-system inflammatory disease.

When I can muster enough energy to go out, friends will say, « You don’t look sick, » and assume I am cured. All the while the invisible body snatchers eat away at my cells turning my brain to spaghetti, my muscles to mush.

On my worst days I enter the twilight zone of semi-consciousness suspended between life and death.

Don’t let me give up.

Hang on. Another second. Another minute. Another hour. A day. A week. A month. A year. A decade. A lifetime.

Trapped in a body that doesn’t work right, I know I am not alone. Millions suffer from invisible diseases. Do not forsake us. We are doing the best we can. When we say we are too tired/sick/weak to go out, prepare dinner, entertain guests, we are not making up excuses. We aren’t malingers; we are champions battling invisible enemies.

Commiserate with us.
Listen.
Let us repeat the same broken record of despair. Then repeat the same pep talk you gave last time.
During flare ups, we lose perspective. Remind us of happier times when we were able to participate.
Make dinner. We won’t be hungry, but coax us to the table.
Send emails, text messages or make calls. Voices uplift.
Hold us while we cry.

Click here, listen and be inspired

We are a society of doers until we are sidelined by injury or illness. Then we feel worthless, like dead weight, like burdens.

Remind us always of how much we are loved. And how maybe, just maybe, we inspire you to endure tough times because you look at us and know how hard we are trying.

Real warriors keep fighting.

Day by day.

Minute by minute.

Word by word.

I am back writing and I missed you.

Call Me Crazy – Celebrate Women Changing the World

Call me crazy, but I have always acted outside the box beginning in early childhood, when no one was going to tell me that I couldn’t throw a football, shoot a basket or run a mile. I was born with a feisty, can-do attitude that served me well in the face of naysayers.

In pre Title IX days when girls were shunned from sports, I stood on the sideline of the boys’ pick up basketball games and demanded, “I got next.”

In a time before accolades, scholarships and professional contracts, I trained hard for no tangible reason. In girlhood, I ran miles across the sidewalks of Sterling, defying the whistles, catcalls, and laughter by putting one foot in front of the other.

In college, while my counterparts partied, I shot hoops in a drafty gym to prepare for next season where we endured conditions more grueling than the game driving ourselves through blizzards to play basketball in empty arenas.

After my team in first women’s pro league (WBL) went broke, I had a good cry. Then I got back up, boarded a plane bound for Paris to play ball in the land of wine and cheese, totally ignorant about French language and culture.

At a time when most women stayed near their hometowns and settled down with neighbor boys, I moved to Europe in pursuit of an absurd dream to play professional basketball.

When France closed the door to foreign women players, I rode the rails across the border to Germany and learned another foreign tongue and way of life.

In countries where I knew not a soul, understood not a word, I learned to observe and listen.

I saw how people could be so different in language, custom and tradition, yet still so similar in the need to be loved and accepted for who they are.

When a car accident ended my career abroad, I didn’t pack up and go home. I married a Frenchman and stayed put. I carved my own niche as one of the few female coaches in the European international high school league.

https://www.youtube.com/watch?v=whpJ19RJ4JY

During my career spanning 5 decades across 4 countries, I have worked with girls from around the globe.

I gladly passed on my knowledge to the next generations of female athletes who never doubted their right to play.

Over the years, I witnessed their opportunities grow greater. I delighted in seeing my daughter and nieces play basketball, soccer, rugby, and run marathons. I took pride in watching my former athletes pursue careers as doctors, lawyers, counselors, and teachers.

By going after my silly dream nearly a half century ago, I helped make it easier for every girl to grow up believing her goal was within reach.

Women, daring to stand up and speak out, have made amazing strides in academics, business, law and politics. For so many girls that courage – to do something never done before – was born on playing fields.

I never had the size, talent, or notoriety of our elite athletes of today. I was no Lisa Leslie, Abby Wambach or Serena Williams. I was just a small town girl filled with my own brand of insanity.

But I learned you don’t have to be famous to make a difference. You just have to dream big.

Go ahead call me crazy.

I am kind of proud of the claim.

It’s my birthday. Raise a glass to all women creating change by being crazy enough to believe they can!

Opening Up About Depression – Mental Illness Awareness Week

Millions of people suffer from mental illness and I am one of them. Millions more are affected because a friend or loved one suffers from a disease that may be difficult to diagnose, and even harder to endure. This October 7-13th, under the theme of Cure the Stigma, the National Alliance on Mental Illness urges everyone to get involved because whether we are willing to admit it or not everyone is involved.

[button link=”https://www.nami.org/Get-Involved/Awareness-Events/Mental-Illness-Awareness-Week” color=”blue” size=”” type=”3d” shape=”pill” target=”_self” title=”” gradient_colors=”|” gradient_hover_colors=”|” accent_color=”” accent_hover_color=”” bevel_color=”” border_width=”1px” border_color=”” border_hover_color=”” shadow=”” icon=”” icon_divider=”yes” icon_position=”center” modal=”” animation_type=”0″ animation_direction=”down” animation_speed=”0.1″ class=”” id=””]Be informed[/button]

In the US alone, one out of five adults and children will experience a mental health condition in their lifetime.

Members of my extended family on both sides of the Atlantic have struggled with mental disorders. In addition to genetic factors, chronic illness, death of loved ones, natural disasters and traumatic stress, any extenuating circumstance can tip the fragile brain chemistry.

Though anxiety and depression may be the most common disorders, there are dozens of others from personality disorders, PSTD, dissociative disorders, psychosis and schizophrenia to name just a few.

My maternal great grandfather, a Norwegian immigrant, lost his 8-year-old daughter, when she died from an illness 2 weeks after arriving on Ellis Island. Three months later, his wife died giving birth to my grandmother. Living in a new country with no support system, he sank into a depression and never recovered.

Though perhaps part of my genetic make up, my depression is more likely a result of living with a chronic illness. Clinical depression will be triggered in an estimated one third of people with serious medical conditions especially in those with a biological vulnerability to a mood disorder.

Depression becomes a common component of diabetes, heart disease, lupus, fibromyalgia, Parkinson, cancer, multiple sclerosis, chronic pain and others illnesses where reoccurring symptoms wreak havoc with one’s life. Some illnesses like Lyme neuroborreliosis, MS and other inflammatory diseases attack brain tissue. With no cure in sight, the end result can be a spiral of despair.

Ever the athlete, I blamed myself. I thought that I should be mentally tougher and physically stronger to overcome the pain, illness and depression, but self-blame serves no purpose.

The toxic stigma associated with mental illness causes shame and fear. Many people continue to suffer in silence preventing them from seeking help.

Eventually through research, I finally found a doctor who could treat my medical condition, which greatly improved my mental state. I sought solace on-line in the words of strangers, who were coping with the same nightmare disease.

Even though chronic illness has no quick fix, knowledge can be empowering. The more I understand my disease, the better I was able to accept and learn to live within the limitations it puts on my life.

Society scorns vulnerability, so we hide our weaknesses and suffer in silence.

Many illnesses involve stigma and shame, especially mental illness. Don’t buy into it. The only people who truly know what you are going through are those people who suffer from or live with a loved one who is suffering from a mental disorder.

Pain, suffering, and a sense of hopeless zaps our energy, so take baby steps to bring you peace. If you are the caretaker give yourself a break. If you are the patient take a time-out. Walk in the woods, work in your garden, read a good book, watch a funny movie, stretch your limbs.

So many times I have felt like I cannot go on. When I can bear it no longer, I cry. Then I pick myself up off the floor and go back to battle. On my worst days, I don’t look too far ahead. I tell myself I only have to make it through the next few moments. Then minute-by-minute, hour-by-hour, day-by-day, I survive.

You will too because you still have so much to offer your family, your friends, your community!

Reach out. Speak up. Help Cure Stigma.

You are not alone.